Agricoltura, Tribute to Gianluca - Ucciso dalla mucca pazza (Killed by nvCJD)
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www.gianlucasgueglia.it
Here is a video of a young man called Gianluca Sgueglia from Italy, my beloved brother, who died on June 9th 2009 aged 33.
We, as his family, were told by medics in 2003 that Gianluca was dying of a rare prion spongiform encephalopathy when in fact all symptoms led to believe that he was actually dying of vCJD. Due to the fact that genetic tests performed at the time on Maria Luisa and Francesco, our parents, proved that this was not a case of hereditary or familial CJD, the medical experts in Italy came up with a theory, which has no scientific value as it is not observable, repeatable or verifiable, according to which Gianluca had a different genotype and a mutated gene due to a mistake that took place in the spermatogenesis/oogenesis process. They also stated that because of the fact that Gianluca had suffered symptoms of the disease for many years it could not have been vCJD.
Eleven months after Gianluca's death, my mother, my father and I have been informed by the Italian health authorities that Gianluca is believed to have died of sCJD.
Truth is that until BSE it was virtually unheard of for a person to develop CJD under the age of 55 years old. Sporadic CJD is usually very sudden and death can be a matter of months or even weeks. Gianluca was suffering from problems such as coordination, balance and orientation for nearly 10 years.
We are convinced that Gianluca died of vCJD and continue to battle with the authorities in Italy for what they see as the correct diagnosis.
Lack of transparency, openness and honesty is creating a web of intrigue and lies surrounding many cases of CJD.
Our family, like many globally, are challenging the establishment wanting answers to their loved ones untimely deaths. For this purpose we have funded a non-profit organization named "Gianluca Sgueglia", whose mission is, among other things, to promote truthful and accurate information on spongiform prion diseases, raising public awareness and promoting the creation of pilot centers for the diagnosis, care and research on such diseases.
Our goal is to get to the truth and get the answers we want and need. I know that supporters of this website will feel the same. Please log on to Gianluca's website/YouTube tribute for more details: http://www.youtube.com/watch?v=8lAxP_2O9ZI
Commento
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Not saying it wasn't vCJD, but is it possible that the symptoms from age 19 and on were something else, before the vCJD started? 9 years is the longest anyone's lived with the disease, and that was with the help of a controversial drug, penotsan.
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All you had to do is bribe the Italian health authorities with some pasta. They would have told you the truth about your brother's death.
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What were his initial symptoms? Was he depressed and anxious or in pain before motor problems happened?
I don't think this is sCJD, I agree. sCJD doesn't tend to kill people at age 33....
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Addio Gianluca...amico del passato e pensiero del presente....
www.gianlucasgueglia.it Here is a video of a young man called Gianluca Sgueglia from Italy, my beloved brother, who died on June 9th 2009 aged 33. We, as his family, were told by medics in 2003 that Gianluca was dying of a rare prion spongiform encephalopathy when in fact all symptoms led to believe that he was actually dying of vCJD. Due to the fact that genetic tests performed at the time on Maria Luisa and Francesco, our parents, proved that this was not a case of hereditary or familial CJD, the medical experts in Italy came up with a theory, which has no scientific value as it is not observable, repeatable or verifiable, according to which Gianluca had a different genotype and a mutated gene due to a mistake that took place in the spermatogenesis/oogenesis process. They also stated that because of the fact that Gianluca had suffered symptoms of the disease for many years it could not have been vCJD. Eleven months after Gianluca's death, my mother, my father and I have been informed by the Italian health authorities that Gianluca is believed to have died of sCJD. Truth is that until BSE it was virtually unheard of for a person to develop CJD under the age of 55 years old. Sporadic CJD is usually very sudden and death can be a matter of months or even weeks. Gianluca was suffering from problems such as coordination, balance and orientation for nearly 10 years. We are convinced that Gianluca died of vCJD and continue to battle with the authorities in Italy for what they see as the correct diagnosis. Lack of transparency, openness and honesty is creating a web of intrigue and lies surrounding many cases of CJD. Our family, like many globally, are challenging the establishment wanting answers to their loved ones untimely deaths. For this purpose we have funded a non-profit organization named "Gianluca Sgueglia", whose mission is, among other things, to promote truthful and accurate information on spongiform prion diseases, raising public awareness and promoting the creation of pilot centers for the diagnosis, care and research on such diseases. Our goal is to get to the truth and get the answers we want and need. I know that supporters of this website will feel the same. Please log on to Gianluca's website/YouTube tribute for more details: http://www.youtube.com/watch?v=8lAxP_2O9ZI